Kidney Sources
A Patient's Guide to Kidney Transplant Surgery

KIDNEY TRANSPLANT SOURCES

American Kidney Foundation
6110 Executive Boulevard
Rockville, MD 20852-3903
Main: (800) 638-8299
Fax: (301) 881-0898

International Transplant Nurses Society
Foster Plaza 5, Suite 300
651 Holiday Drive
Pittsburgh, PA 15220
(412) 928-3667

Transplant Recipients International Organ (TRIO)
1735 I Street NW, Suite 917
Washington, DC 20006
(202) 293-0980
(800) 874-6386

United Network for Organ Sharing (UNOS)
The National Organ Procurement and Transplantation Network
1100 Boulders Parkway, Suite 500
P.O. Box 13770
Richmond, VA 23225-8770
(804) 330-8500



OTHER MEDICAL SOURCES

AGING

National Council on the Aging
800-424-9046

American Association of Retired Persons (AARP)
800-441-AARP

AIDS

National AIDS Hotline
800-342-2437 (AIDS)
800-344-7432 (Spanish)

National Association of People with AIDS (NAPWA)
202-898-0414

National Institute of Allergy & Infectious Diseases
AIDS Clinical Trials Information Service
800-874-2572

CDC National AIDS Clearinghouse
800-458-5231

The Foundation for Children with AIDS
617-442-7442

ALCOHOL

Women for Sobriety
800-333-1606

Alcoholics Anonymous (AA)
(see white pages in phone book for local chapter)

Al-Anon Family Group Hotline
800-356-9996

National Council on Alcoholism and Drug Dependence
800-NCA-CALL

Recovering Network
800-527-5344

Alcohol Rehabilitation for the Elderly
800-354-7089 or 800-344-0824 (Illinois)

MADD Victim Hotline
800-438-6233

ALLERGY/ASTHMA

The Anerican Academy of Allergy and Immunology
800-822-2762

The Asthma and Allergy Foundation of America
800-727-8462

National Allergy and Asthma Network
703-383-4403

American Lung Association
212-315-8700

ALZHEIMER'S DISEASE

Alzheimer's Association
800-272-3900

ANOREXIA/BULIMIA

Bulimia Anorexia Self-Help
800-227-4785

Eating Disorders Helpline Unit
800-382-2832

ARTHRITIS

The Arthritis Foundation
800-283-7800

National Clearing House on Arthritis, Muscular, Skeletal, and Skin Diseases
301-495-4484

BIRTH DEFECTS

National Clearinghouse for Infants with Disabilities and Life-threatening Conditions
800-922-9234

March of Dimes
914-997-4415

BLADDER HEALTH

Bladder Health Council of the American Foundation for Urologic Disease
800-242-2383

BLIND/VISION IMPAIRED

American Council of the Blind
800-424-8666

Blind Children's Center
800-222-3566 or 800-222-3567 (California)

Guide Dog Foundation for the Blind
800-548-4337

National Retinitis Pigmentosa Foundation
800-683-5555

National Society to Prevent Blindness
800-331-2020

The National Eye Institute of NIH
301-496-5248

CANCER

Cancer Information Service of the National Cancer Institute
800-4-CANCER or 800-524-1234 (Hawaii)
800-638-6070 (Alaska)

AMC Cancer Research Center Information and Counseling Line
800-525-3777 or 303-233-6501 (Colorado)

American Cancer Society
800-227-2345

Candlelighters Childhood Cancer Foundation
800-366-2223

National Hospice Organization
800-658-8898

CEREBRAL PALSY

United Cerebral Palsy Association
800-872-5827

Easter Seals
312-726-6200

CHILDREN'S HEALTH

Hotline of Child Help USA
800-422-4453

Parents Anonymous
800-421-0353

National Council on Child Abuse
800-222-2000

National Runaway Switchboard
800-621-4000

Sudden Infant Death Sundrome (SIDS) Alliance
800-221-SIDS

CHRONIC FATIGUE SYNDROME

Centers for Disease Control and Prevention (CDC)
404-332-4555

CROHN'S/COLITIS

Crohn's and Colitis Foundation of America 800-343-3637

CYSTIC FIBROSIS

Cystic Fibrosis Foundation
800-344-4823

DEPRESSION

National Foundation for Depressive Illness
800-248-4344

Depression after Delivery
800-944-4773

DIABETES

American Diabetes Association (ADA)
800-232-3472

Juvenile Diabetes Foundation (JDF)
800-223-1138

National Diabetes Information Clearinghouse
301-468-2162

DOWN'S SYNDROME

National Down's Syndrome Congress
800-232-NDSC

DRUG ABUSE/COUNSELING

American Council for Drugs
800-488-DRUG

Narcotics Anonymous Cocaine Hotline
800-347-8998

National Institute on Drug Abuse
800-662-HELP

Clearinghouse for Alcohol and Drug Information
800-729-6686

DYSLEXIA

Orton Dyslexia Society
800-ABCD-123 or
410-337-9459 (Maryland)

EPILEPSY

Epilepsy Foundation of America
800-332-1000

National Easter Seals Society
312-243-8400

GUILLAIN-BARRE SYNDROME

Guillain-Barre Syndrome (GBS) Foundation International
215-667-0131

HEADACHE

National Headache Foundation
800-843-2256 or
800-523-8858

HEAD INJURY

National Head Injury Foundation
202-296-6443

HEARING IMPAIRMENT

National Hearing Aid Helpline
800-521-5247

Better Hearing Institute
800-EAR-WELL

HEART

American Heart Association (AHA)
National Center
7272 Greenville Avenue
Dallas, TX 75231-4596
(800) 242-8721
(Local and national AHA and the AHA Cookbook
are good sources of nutritional advice.)

HOSPICE

National Hospice Organization (NHO)
800-658-8898

Children's Hospice International 800-242-4453

HUNTINGTON'S DISEASE

Huntington's Disease Society of America
800-343-4372

KIDNEY DISEASE

American Kidney Fund
800-638-8299

National Kidney Foundation
800-622-9010

LANGUAGE DISORDERS

American Speech-Language-Hearing Association
800-638-TALK

LYME DISEASE

Centers for Disease Control and Prevention (CDC)
(information on Lyme Disease)
404-332-4555

LUNG DISEASE

Lunglife
800-222-5864

American Lung Association
212-315-8700

LUPUS

Lupus Foundation of America
800-558-0121

MENTAL HEALTH

National Mental Health Association Information Center
800-969-6642

National Alliance for Mental Illness
800-969-NAMI

Obsessive-Compulsive Foundation
201-878-5669

The National Resource Center on Homelessness & Mental Illness
800-444-7415

Food & Drug Administration
(information on Panic Disorder)
301-443-3170

MUSCULAR DYSTROPHY

Muscular Dystrophy Association (MDA)
602-529-2000

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation
800-541-5454

PARKINSON'S DISEASE

The American Parkinson Disease Association
800-223-2732

The National Parkinson Foundation
800-327-4545 or
800-433-7022 (Florida)
305-547-6666 (Miami)

Parkinson's Education Program
800-344-7872

POISON

Emergency number(s) can be found on the first page of your local phone book

PREGNANCY, PRENATAL CARE
(See Women's Health)

PROSTATE HEALTH

Prostate Health Council
800-242-2383

RARE DISEASES

Centers for Disease Control and Prevention
(information on Rabies)
404-332-4555

National Organization for Rare Disorders (NORD)
800-999-6673

National Information Center for Orphan Drugs and Rare Diseases
800-456-3505

National Institute of Allergy and Infectious Diseases of the National Institutes of Health
301-496-5717

REYE'S SYNDROME

National Reye's Syndrome Foundation
800-233-7393

SCLERODERMA

United Scleroderma Foundation
800-722-HOPE or
408-728-2202 (California)

SEXUALLY TRANSMITTED DISEASES

National STD Hotline
800-227-8922

Sex Information and Education Council
212-819-9770

SICKLE CELL DISEASE

National Association of Sickle Cell Disease
800-421-8453

SLEEP DISORDERS

American Sleep Disorders Association
507-287-6006

SPINAL INJURIES

Spina Bifida Assoiation of America
800-621-3141

National Spinal Cord Injury Association
800-962-9639

American Paralysis Association Hotline
800-526-3456

STROKE

National Stroke Association and the Alliance for Aging
800-423-1925

National Institute of Neurological Diseases and Stroke (NIDS) of the National Institutes of Health (NIH)
301-496-5924

TAY-SACHS DISEASE

Tay-Sachs Disease
NIH, Child Health and Human Development
301-496-5133

TOURETTE'S SYNDROME

Tourette's Syndrome Association
800-237-0717 or
718-224-2999 (New York)

TOXIC SHOCK SYNDROME

Toxic Shock Syndrome
FDA 301-443-3170

TUBERCULOSIS

American Lung Association
212-315-8700

TUBEROUS SCLEROSIS

National Tuberous Sclerosis Association
800-225-6872 or
301-459-9888 (Maryland)

WOMAN'S HEALTH

Food & Drug Administration
(information on Birth Control)
301-443-3170

Planned Parenthood Information Line
800-248-7797

National Women's Health Network
202-347-1140

PMS Access
800-222-4767 or
608-833-4767

The International Childbirth Education Association
800-624-4934

Pregnancy Counseling Services
800-542-4453

National Abortion Federation
800-771-9100

Planned Parenthood Birth Control 212-541-7800
(for local chapter, look in the white pages of phone book)

OTHER USEFUL RESOURCES

Centers for Disease Control (CDC)
404-332-4555

Center for Proper Medication Use
P.O. Box 13329
Philadelphia, PA 19101-3329
215-895-1131

Disease Prevention and Health Promotion Center
800-336-4797

National Library of Medicine
800-272-4787

National Institutes of Health (NIH)
301-368-6553


Publications:

Consumer Reports on HEALTH
513-860-1178

National Information Center for Children and Youth with Handicaps
800-999-5599

National Coalition of Hispanics and Health and Human Services Organization
202-387-5000

National League of Nursing/American Public Health Association
212-582-1022

American Kidney Fund Financial Assistance
800-638-8299

Food & Drug Administration
General Information: 301-443-3170
Reporting adverse reaction to drugs
MEDWATCH
800-fda-1088
FAX 800-FDA-0178

FDA Regional Office (see white pages in phone book)

National Organization for Rare Diseases (NORD)
800-999-6673

President's Council of Physical Fitness and Sports
(Department of Health and Human Services)
202-272-3430

National Center on Child Abuse and Neglect
(Department of Health and Human Services)
202-245-0586

National Health Information Center
(Department of Health and Human Services)
301-565-4167
800-336-4797



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If you have any questions, please contact us:
USC Kidney Transplant Program
Phone: (323) 442-5908, Fax: (323) 442-5721
E-mail: usckidney@surgery.hsc.usc.edu